MAPA FALANTE DE CRIANÇAS COM NECESSIDADES ESPECIAIS NA VOZ DE MÃES CUIDADORAS

Abstract

Objective: to describe the institutional support network accessed by children with special health needs in the voice of caregiving mothers. Method: research with a qualitative approach, developed with mothers caring for children with special health needs, users of a Children's Polyclinic located on the western border of Brazil. The study was developed through the creativity and sensitivity dynamics Mapa Falante, with the metaphor of drawing for the production of data. The production of the data was carried out in the home space, the speeches were audio recorded, transcribed and analyzed through the analysis of the Pecheutian discourse. Results: from the perspective of caregiving mothers, children who have special health needs need a broad social support network, represented by the institutional and social networks that are part of their children's daily lives. In the speech of these women, it was also observed the difficulty of including children in society, due to the presence of social taboos of the special need for health care. Mothers are primary, exclusive caregivers and care is sometimes shared with other family members. Conclusions: the solitary care, shared in some moments, is evidenced in the speech of the caregiving mothers. The difficulty of inserting the child in school, the diversity of health services required also appear in the artistic production and in the statements of these women. The discourse denotes the importance of nursing care for the preparation of these children's families for the continuity of care in the home space.